CONNECCS

Camp Casco creates amazing camp experiences that build lifelong connections for children with cancer and their families. Our vision is to build a supportive community for children with cancer and their families.

www.campcasco.org

Email: info@campcasco.org

Phone: (857) 30-CASCO (2-2726)

Camp Make A Dream

Cost-free programs offered to children, teens, young adults and women with cancer, with programs for children who have a sibling or a parent with cancer.

www.campdream.org

Phone: (406) 549-5987

Camp Rising Sun

One week summer program for kids (ages 5-17) with cancer

www.camprisingsun.com

Email: info@campringingsun.com

Phone: (203) 481-7277

Camp Sunshine

Provides camp sessions for children suffering from/who have suffered from cancer and their families

www.campsunshine.org

Email: info@campsunshine.org

Phone: (207) 655-3825

First Descents

Provides outdoor adventures for young adults

(ages 18-39) impacted by cancer

www.firstdescents.org

Email: info@firstdescents.org

Phone: (303) 945-2490

Hole in the Wall Gang Camp

Summer camp for children with

medical conditions, including cancer
www.holeinthewallgang.org

Email: admissions@holeinthewallgang.org

Phone: (860) 429-3444

True North Treks

Free outdoor treks for teens and young adult cancer survivors as well as long term survivorship support

www.truenorthtreks.org

Co-Pay Prescription Assistance Program

Healthwell Foundation

Provides financial assistance to eligible individuals to cover coinsurance, co-payments, healthcare premiums and deductibles for certain treatment.

www.healthwellfoundation.org

Email: grants@healthwellfoundation.org

Phone: (800) 675-8416

Partnership for Prescription Assistance

Helps patients without prescription drug coverage get the medicines they need for free or nearly free.

www.pparx.org

Patient Advocate Foundation Co-pay Assistance Program

Provides financial assistance to patients for prescription drug co-payments. www.copays.org

Phone: (757) 952-0118

Disability Services

Idea Partnership

Provides info about learning disabilities

www.ideapartnership.org

Phone: (877) 433-2463

Learning Disabilities Online

Provides info about learning disabilities

www.ldonline.org

Phone: (212) 545-7510

National Center for Learning Disabilities

Provides info and resources regarding learning disabilities

www.ncld.org

Email: help@ncld.org

(888) 575-7373

National Center on Response to Intervention (RTI)

Provides info on RTI, guidelines to help struggling students succeed

www.rti4success.org

The PLUS Company

People Learning Useful Skills: support for people with disabilities

http://www.pluscompany.org

Phone: (603) 889-0652

RTI Action Network

Provides info on RTI, guideline to help struggling students succeed
www.rtinetwork.org

The What Works Clearing House

Site researching “what works in education”
www.ies.ed.gov/ncee/wwc

Phone: (202) 245-6940

Emotional Support & Mental Health

American Brain Tumor Foundation Support Page

www.abta.org/care-treatment/support-resources

CareLine (Support Hotline): (800) 886-2282

American Cancer Society: Cancer Survivors Network

Provides a community for those affected by cancer

www.cancer.org/treatment/support-programs-and-services.html

CancerCare

Free, professional support services for anyone affected by cancer
www.cancercare.org/tagged/post-treatment_survivorship

Email: info@cancercare.org

Phone: (800) 813-4673

Cancer Support Community

Provides free psychosocial support to people recovering from cancer

www.cancersupportcommunity.org

Email: help@cancersupportcommunity.org

Phone: (888) 793-9355

Children's Brain Tumor Foundation

www.cbtf.org/support-and-connections

Phone: (866) 228-4673

National Institute of Mental Health

Depression awareness, recognition, and treatment program

www.nimh.nih.gov

Email: nimhinfo@nih.gov

Phone: (866) 615-6464

Leukemia and Lymphoma Society Support Groups Page

Provides support groups
www.lls.org/support-resources;

Email: info@lls.org

Phone: (914) 949-5213

To speak with an information specialist call: (800) 955-4572

Next Step

Provides free year-round education and support programs for young people, ages 16-29, who are coping with cancer, HIV and rare genetic disorders.

www.nextstepnet.org

Phone: (617) 864-2921

Pediatric Oncology Resource Center

Online resource center created by and for people who know young people who are recovering from cancer.

www.ped-onc.org

Screening for Mental Health

www.mentalhealthscreening.org

Email: smhinfo@mentalhealthscreening.org;

Phone: (781) 239-0071

Starbright World

A global online community of young people with chronic illness.

www.starbrightworld.org

Stupid Cancer

Young adult cancer advocacy, research, and support.

www.stupidcancer.org

The Ulman Cancer Fund for Young Adults

Resources for support, educating, and connecting young adults and their loved ones affected by cancer.
www.ulmanfund.org

Email: info@ulmanfund.org

Phone: (410) 964-0202

Special Education and Advocacy

American Cancer Society: Cancer Action Network

www.acscan.org
Phone: (202) 661-5700

From Emotions to Advocacy: The Special Education Survival Guide

(2nd Edition) by authors Pam and Pete Wright

Disability Rights Legal Center: Cancer Legal Resource Center
http://www.disabilityrightslegalcenter.org/cancer-legal-resource-center" rel="">www.disabilityrightslegalcenter.org/cancer-legal-resource-center
Email: clrc@drlcenter.org

Phone: (866) 843-2572

Federation for Children with Special Needs

www.fcsn.org

Email: info@fcsn.org

Phone: (617) 236-7210

(800) 331-0688

Intervention Central

Resources for special education

www.interventioncentral.org

National Association of School Psychologists

www.nasponline.org
Phone: (307) 657-0270 or (866) 331-6277

For a list of email contacts go to www.nasponline.org/about_nasp/meet_staff.aspx

National Coalition for Cancer Survivorship

www.canceradvocacy.org
Email: info@canceradvocacy.org

Phone: (877) 622-7937

Patient Advocate Foundation

www.patientadvocate.org

Phone: (800) 532-5274

Wrightslaw

Provides info about special education law and advocacy as well as libraries regarding these topics

www.wrightslaw.com

Email: info@webmaster.com;

Resources for College

Colleges for Students with Learning Disabilities or AD/HD

8th Edition

Published by Peterson’s

College Scholarships

Colleges with programs for students with learning disabilities

http://www.college-scholarships.com/?s=learning+disabilities

Help for College Students with Disabilities

Help for college students with disabilities

www.wrightslaw.com/flyers/college.504.pdf

Office for Civil Rights

Students with disabilities preparing for postsecondary education

www.ed.gov/about/offices/list/ocr/transition.html

Phone: (800) 872-5327

Ready by 21

Toolkits/resources with strategies for preparing kids for college and work

www.readyby21.org

Scholarships and Educational Financial Aid Resources

Alexander Graham Bell Association for the Deaf and Hard of Hearing

Scholarships for the deaf and hard of hearing.

www.agbell.org

Email: scholarships@agbell.org

American Foundation for the Blind

Scholarships for the blind

www.afb.org

Phone: (212) 502-7600

AmeriCorps

Network of national service programs, requires a one-year full-time commitment and will then award an educational grant for schooling or repaying student loans.

www.nationalservice.gov/programs/americorps

Cancer for College

List of scholarships for cancer survivors around the country.

www.cancerforcollege.org

Cancer Survivor Fund

Provides college scholarships and medical expense assistance for those diagnosed with cancer, receiving treatment, or in remission

www.cancersurvivorsfund.org

College Board

Free online scholarship search

www.bigfuture.collegeboard.org/scholarship-search

College Scholarships

Open Access Scholarship Search Engine

Enter "cancer or cancer survivor" for Keyword

www.collegescholarships.org

Department of Education

Student guide to financial aid and application for federal financial aid

www.ed.gov

Expect Miracles Foundation

College scholarship program for students with a history/current diagnosis of cancer

www. expectmiraclesfoundation.org/expect-miracles-scholarship

Financial Aid Information Page

Overview of financial aid options and cost calculations as well as Q&A forums with financial aid administration volunteers.

www.finaid.org/scholarships/service.phtml

The Gates Millennium Scholars

Provides scholarships to students at any U.S. accredited college or university

www.gmsp.org

Heath

Provides information and small scholarships for people with disabilities who are seeking education after high school.

www.heath.gwu.edu/financial-aid-scholarships-and-internships

The Mesothelioma Cancer Alliance

Awards $4,000 to one student each semester whose life has been impacted by cancer

www.mesothelioma.com/scholarship

My Hometown Heroes

Provides scholarships to young adult cancer survivors ages 17 to 39

myhometownheroes.org

National Amputation Foundation

Offers college scholarships to students with past amputations

www.nationalamputation.org/scholar1.html

National Children's Cancer Society

Beyond the Cure Scholarship Program

Awards college scholarships to childhood cancer survivors

www.thenccs.org/scholarship

National Collegiate Cancer Foundation

Offers $1,000 scholarship to a cancer survivor or current patient between the ages of 18-35

www.collegiatecancer.org/scholarships

National & Community Service Program

Provides full time educational awards.

www.nationalservice.gov/build-your-capacity/grants

National Grace Foundation

Offers free college consulting services to teen cancer patients and survivors.

www.graceamerica.org/GraceFoundation/services

Nursing Majors

Awards scholarships ranging from $250 to $500 to qualified students with disabilities to continue their education in a nursing program

www.exceptionalnurse.com/scholarship.php

Patient Advocate Foundation “Scholarships for Survivors” Program

Offer a $5,000 scholarship to any student whose education has been interrupted, slowed down, or in some way altered by a disease.

www.patientadvocate.org/help.php

Pediatric Brain Tumor Foundation of the United States

Provides funding for technical or vocational schools and junior or four-year colleges for pediatric brain tumor survivors

www.curethekids.org/family-resources/scholarships/#.WeDKDVIzXcs

Pediatric Oncology Resource Center

List of scholarships for cancer survivors.

www.ped-onc.org/scholarships

Ronald McDonald House Charities – Eastern New England chapter

Offers scholarships to students from disadvantaged communities who face limited access to educational and career opportunities

www.rmhcene.org/what-we-do/grants-scholarships

Surviving and Moving Forward: The Sam Fund

Provides grants to cancer survivor’s ages 21-39 to assist with education, living expenses, loans, and medical expenses

www.thesamfund.org/get-help/grants

Scholarship.com

Database where you can search millions of scholarships

www.scholarships.com/financial-aid/college-scholarships

Soroptimist

Assist women who are the primary financial support for their families

www.soroptimist.org/awards/live-your-dream-awards.html

Special Love

Offers college scholarships to childhood cancer survivors

www.specialove.org/scholarships

Ulman Cancer Fund for Young Adults

Matt Stauffer Memorial Scholarship

Helps young adults ages 15 to 39 affected by cancer continue their education.

www.ulmanfund.org/scholarships

Disability Scholarships: Learning and Physical Limitations

Anne Ford & Allegra Ford Thomas Scholarship

Offer financial assistance to graduating high school seniors with learning disabilities who are pursuing post-secondary education.

www.ncld.org/scholarships-and-awards

American Association on Health and Health and Disability

Scholarship awarded to student with a disability who is pursuing undergraduate/graduate studies related to health and disability.

www.aahd.us/initiatives/scholarship-program

Colleges with Programs for Students with Learning Disabilities

List of colleges with programs designed to support students with learning disabilities

www.college-scholarships.com/colleges-by-state/colleges-with-programs-for-students-with-learning-disabilities

Fertility

Dana Farber Fertility Preservation Program

Fertility consultation and discussion of preservation options

www.dana-farber.org/pediatric-fertility-preservation-program

Email: pedi_onc@dfci.harvard.edu

Males
Phone (888) 733-4662

Females

Phone (for girls 15 years or older): (617) 732-4222
Phone (for girls under 15 years): (617) 355-5768

Fertile Hope

Understanding fertility risks & options, fertility preservation discounts

www.fertilehope.org

Phone: (855) 220-7777

Fertility Therapy for Cancer Patients and Survivors: Brigham and Women’s Hospital

Elective egg freezing and fertility preservation

www.brighamandwomens.org/obgyn/infertility-reproductive-surgery/fertility-preservation

Phone: (617) 732-4222

Fertility Within Reach

Provides financial assistance for fertility preservation

www.fertilitywithinreach.org/banking-on-the-future

Save My Fertility

Information regarding fertility preservation before and during cancer treatment

www.savemyfertility.org/about-savemyfertility

Take Charge

Create awareness around Oncofertility, help start conversations and support fertility preservation for cancer patients.

www.letstakecharge.org

Verna's Purse

Financial assistance for cancer survivors for fertility preservation

www.reprotech.com/verna-s-purse.html

Connecticut

REACH for the STARS Survivorship Program

Connecticut Children's Medical Center

282 Washington Street Hartford, CT

Phone: (860) 545-9630 | Fax: (860) 545-9622

Eileen Gillan, MD; Kerri Moss, MD; Courtney King, RN

Hartford Hospital: Cancer Center Classes, Events, Programs, and Support Groups

www.hartfordhospital.org/services/cancer-care

Phone: (860) 545-5000

Yale Cancer Genetics Program

www.yalecancercenter.org/patient/specialty/genetics/

Phone (203) 200-4362

Yale Cardio-Oncology Program

www.yalecancercenter.org/patient/specialty/cardiotoxicity/

Phone 203) 785-7867

Yale Fertility Center

www.medicine.yale.edu/obgyn/yfc/

Phone (203) 785-4708

Yale Metabolic Health and Weight Loss

www.yalemedicine.org/departments/metabolic-health-and-weight-loss-program

Phone: (203) 737-4138

Yale Sexuality and Intimacy Program

www.yalecancercenter.org/patient/specialty/sip/sip.aspx

Phone (203) 785-7385 (women)

(203) 785-2815 (men)

Yale Stress Center

www.medicine.yale.edu/psychiatry/stresscenter

Phone: (203) 737-3398

Maine

AccessMaine

Helps people with disabilities and their families
http://www.accessmaine.org/index.htm; Email: BEAS.Webmaster@maine.gov

The Dempsey Center

Offers a variety of programs to help support those affected by cancer

http://www.dempseycenter.com

Email: info@Dempseycenter.org
Phone: (207) 795-8250 / (877) 336-7287

Logisticare

For Mainecare recipients to arrange rides to and from medical appointments or sign up for mileage reimbursement

https://member.logisticare.com

Maine Cancer Foundation

Funds programs for those affected by cancer
http://mainecancer.org

Email: info@mainecancer.org

Phone: (207) 773-2533

STRIVE: Serving Teens and Young Adults with Intellectual and Emotional Disabilities
https://www.pslstrive.org/

Email: info@pslstrive.org

Phone: (207) 774-6278

Massachusetts

Leukemia & Lymphoma Society Family Support Groups, Massachusetts Chapter

www.communityview.lls.org

Phone: (508) 810-1300;

Address: Suite 101, 9 Erie Drive, Natick, MA 01760

Boston Cancer Survivors

Website primarily for young adult cancer survivors

www.bostoncancersupport.org/young-survivors/bostoncancersupport.org

Special Education in Massachusetts

www.doe.mass.edu/sped/

Special Needs Advocacy Network

www.spanmass.org

Email: info@spanmass.org

Phone: (508) 655-7999

Survivors Journey

A non-profit organization which supports adults, young adults, and pediatric cancer survivors, and their caregivers and loved ones.

www.survivorjourneys.org

Email: survivorshipprogram@gmail.com

Phone: (413) 276-6100

Wellness Warriors

Dragon Boat team for cancer survivors; A paddling support group for men and women of all ages diagnosed with cancer

www.wellnesswarriorsboston.org

New Hampshire

211 New Hampshire

Provides connection to statewide resources for multiple needs;
http://www.211nh.org/

Area Agencies in New Hampshire

Provide developmental services
www.dhhs.nh.gov/dcbcs/bds/agencies.htm

Brain Injury Association of New Hampshire

Provides various information and services

www.bianh.org

Phone: (800) 773-8400 or (603) 225-8400

Community Mental Health Centers in NH

www.dhhs.nh.gov/dcbcs/bbh/centers.htm

Dana-Farber/New Hampshire Oncology-Hematology in Londonderry

Provides Resources as well as a list of support groups

Click the “Support Groups” tab near the middle of the page;

www.dana-farber.org/About-Us/Satellite-Locations/Dana-FarberNew-Hampshire-Oncology-Hematology.aspx;

Phone: (603) 552-9100

Disabilities Rights Center

www.drcnh.org

Email: advocacy@drcnh.org; Phone: (603) 228-0432

The Division of Career Technology and Adult Learning

www.education.nh.gov/career/index.html

Easter Seals Children and Family Services

www.easterseals.com/nh/our-programs/childrens-services/

Phone: (603) 623-8863

Frisbie Memorial Hospital Community Resources

Provides a list of support groups in the Rochester NH area & statewide

www.frisbiehospital.com/health-and-wellness/community-resources

Phone: (603) 332-5211

Gateways Community Services

Provides services for those with disabilities

www.gatewayscs.org

Email: info@gatewayscs.org

Phone: (603) 882-6333

Governor’s Commission on Disability

www.nh.gov/disability

Email: Disability@nh.gov

Phone: (603) 271-2773 or

(800) 852-3405

Map of mental health providers for children by region in NH and VT

(Click “Providers by County Map” tab on left-hand side of page)

www.chadkids.org/psychiatry/patient-support-education.html

National Alliance on Mental Illness, New Hampshire (NAMI-NH)

Support, education, and advocacy regarding mental illness

www.naminh.org

Email: info@naminh.org;
Phone: (603) 225-5359 or

(800) 242-6264

New Hampshire Department of Education

www.education.nh.gov

Phone: (603) 271-3494

New Hampshire Family Voices

Supports families who have kids with special needs
www.nhfv.org

Email: nhfv@yahoo.com

Phone: (800) 852-3345 (ext. 4525) or

(603) 271-4525

New Hampshire Partners in Health

www.pih.org/programs/cancer-chronic-diseases

New Hampshire Vocational Rehabilitation

www.education.nh.gov/career/vocational

Parent Information Center

www.parentinformationcenter.org

Parent Information Center on Special Education

www.picnh.org

Parent Information Center on Special Education Resources Page

Provides several resources about special education, such as “A Family Guide to Special Education in NH”

www.picnh.org/brochures-tool-kits

ServiceLink: Aging and Disability Resource Center

www.nh.gov/servicelink/

Southern New Hampshire Medical Center Living with Cancer Support Groups and Resource Links

www.snhhealth.org/our-services/cancer-care/living-with-cancer/living-with-cancer-support-groups

Special Education Directors and Contacts in NH

www.education.nh.gov/instruction/special_ed

St. Joseph Hospital

http://www.stjosephhospital.com

For a list of support groups, visit:

www.stjosephhospital.com/patients-and-visitors/patient-guide/support-groups

Rhode Island

Goodwill Industries of Rhode Island

Provides vocational and other services

Web: www.goodwillri.org

Phone: (401) 861-2080

The Izzy Foundation

Mission is to design, fund and Izspire creative projects and programs that will help families live, laugh, love and play during and after cancer.

www.theizzyfoundation.org

Phone: (401) 331-4999

Kid’s Link Rhode Island

Emergency Hotline for Kids in Emotional Crisis

www.lifespan.org/centers-services/kids-link-ri

Phone: (855) 543-5465

Parent Support Network

Group of family members, youth, and adults working together to promote awareness for the safety, health, well-being, and recovery of individuals of all ages who are risk or who have behavioral health challenges.

www.psnri.org

Phone: (800) 483-8844

The Point: Services for Adults with Disabilities

The POINT is a statewide resource network that provides information, referrals, and long-term care options to seniors, adults with disabilities, and caregivers.

www.uwri.org/get-help-2-1-1/the-point

Phone: In Rhode Island, dial 211

Rhode Island Community Action Programs

The mission of the Rhode Island Community Action Association is to serve Rhode Island’s network of Community Action Agencies through training, technical assistance, public education, capacity building, and development of public policy to address the impact of poverty in Rhode Island.

www.ricommunityaction.org

Phone: (401) 941-0774

Rhode Island Community Food Bank

www.rifoodbank.org

Email: contactus@rifoodbank.org

Phone: (401) 942-6325

Rhode Island Prevention Resource Center

The Rhode Island Council of Community Mental Health Organizations (RICCMHO) is a responsive resource comprised of private, non-profit community behavioral healthcare organizations in Rhode Island.

Web: www.riprc.org

Rhode Island Department of Human Services

Office of Rehabilitation Services—Includes Vocational Rehabilitation, as well as Career Planning for Students with Disabilities

www.ors.ri.gov

Phone: (401) 421-7005

Rhode Island Legal Services

www.rils.org

Phone: (401) 274-2652

Rhode Island Tutorial and Educational Services

Provides tutoring, workshops, and summer learning programs

www.ritutorial.org

Email: info@ritutorial.org